2nd Annual Patient Advocacy Summit
Come join us for our 2nd Annual “RARE Patient Advocacy Summit” to be held on Friday, September 20, 2013 at The Balboa Bay Club & Resort in Newport Beach, CA. Register today! Seating is limited for...
View ArticlePrince George’s woman works to raise awareness about rare disease
Lanham resident to speak at Patient Education Day event about Cushing’s disease By Sophie Petit Staff Writer Greg Dohler/The Gazette Lanham resident Stacey L. Hardy, a survivor of Cushing’s disease,...
View ArticleMeet Dr. Theodore Friedman in Denver
Dr. Theodore Friedman will be back in Denver, Colorado and will host a free patient support group on Sunday November 10, 2013 at 10 am at his sister’s house. 152 S Trenton Denver CO 80230 It’s in...
View ArticleNovember 15 Webinar: “Pituitary Disorders and the Family”
Webinar: “Pituitary Disorders and the Family” Presented by Jamie L. Banker, Ph.D., Director of Counseling Psychology California Lutheran University Date: Friday, November 15, 2013 Time: 12:00-1:00 PM...
View ArticleWebinar: Advances and Limitations of Endoscopic Pituitary Surgery
Presented by Paul Gardner, MD Check back with us for registration information or contact us at webinar@pituitary.org. Date: Wednesday, December 4, 2013 Time: 9:00 – 10:00 AM PST After registering you...
View ArticleBrigham & Womens Hospital’s Pituitary Day 2014
In partnership with the Brain Science Foundation, the Brigham and Women’s Hospital Pituitary Neuroendocrine Center is pleased to present Pituitary Day 2014 Saturday, March 29, 2013 8 AM – 5 PM...
View ArticleRare Disease Week
The House & Senate Congressional Calendars came out this week! Congress is in session during Rare Disease Week – SaveTheDate! Feb. 25th – Feb. 28th, 2013 4 Days of Rare Disease Events in Washington...
View ArticleRare Disease Week, 2014
You are invited to join RDLA and 200 rare disease advocates in Washington, DC for Rare Disease Day (Week), February 25 – 28, 2013. Below is an overview of the events, registration will be coming...
View ArticleInterview with Miriam K (Meeks089), Pituitary Success Story
Miriam writes in her bio: “I suffered for eight long years with Cushings disease . I had surgery on August 1 , 2012 , I look like a different person , and act like a different person. I would love to...
View ArticleTonight! Interview with Miriam K (Meeks089), Pituitary Success Story
Miriam writes in her bio: “I suffered for eight long years with Cushings disease . I had surgery on August 1 , 2012 , I look like a different person , and act like a different person. I would love to...
View ArticleCushing’s Awareness Patient Day
Saturday, February 1st, 2014 San Francisco, California Hosted by Kate Tully, R.N. and Katherine Waidner, R.N. Cushing’s Patient Advocates – Corcept Therapeutics Agenda and details to follow The day...
View ArticleCushing’s Patient Awareness Day Invitation
Location: Sheraton Fisherman’s Wharf 2500 Mason Street, San Francisco, California The goal of the program is to Educate, Empower and Support. We will: -Provide education on how Cushing’s Syndrome...
View ArticleDr Friedman: Meeting on Thyroid and Hormonal Problems
Dr. Theodore Friedman will host a free meeting on thyroid and hormonal problems on Sunday February 16 from 7-8 PM PST at Anshe Emes synagogue-1490 S. Robertson Blvd., Los Angeles, CA 90035. The...
View ArticleCushing’s Awareness Challenge, Day Five
The picture above is from a 2007 Cushing’s meeting in Columbus, OH when we all gathered around my rented yellow Cushie Cruiser. There are more pictures from that year at Columbus, OH 2007 As always,...
View ArticleCushing’s Awareness Challenge 16
That’s for sure! Cushing’s patients have a lot of support these days, at least online. I’m not seeing much offline in the way of regular group support meetings. Over the years, there have been lots...
View ArticleDiagnosing and Treating Cortisol Excess and Deficiency
From Day 1 of the 16th International Congress of Endocrinology and the Endocrine Society’s 96th Annual Meeting and Expo » Chicago, IL – June 21, 2014 A phase 2 study of Chronocort®, a modified release...
View ArticleUtility of measurement of dexamethasone levels in the diagnostic testing for...
From Day 1 of the 16th International Congress of Endocrinology and the Endocrine Society’s 96th Annual Meeting and Expo » Chicago, IL – June 21, 2014 ST Sharma, JA Yanovski, SB Abraham, LK Nieman...
View ArticleClinical effectiveness of metyrapone monotherapy in 195 patients with...
From Day 1 of the 16th International Congress of Endocrinology and the Endocrine Society’s 96th Annual Meeting and Expo » Chicago, IL – June 21, 2014 E Daniel, SJB Aylwin, SG Ball, K Boelaert, D...
View ArticleUse late-night salivary cortisol to catch recurrent Cushing’s
By: M. ALEXANDER OTTO, Clinical Endocrinology News Digital Network JULY 3, 2014 AT ICE/ENDO 2014 CHICAGO – Late-night salivary cortisol exceeded normal limits in 10 women with recurrent Cushing’s...
View ArticleDay 2 Coverage of ENDO 2015
OR22-Osteoporosis–Winner: Outstanding Abstract Award Effects of teriparatide on bone microarchitecture in postmenopausal women with osteoporosis S Orlov, R Ridout, L Tile, M Kapral, S Cardew, MR...
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